Big moves... we changed Kayden's hat today :)
He hasn't progressed as far as they hoped, so he may not be getting the tube out Monday. He could be, but they aren't sure. He hasn't taken any steps backwards... just been hanging out on this little plateau :/ Slow & steady I guess... I bet he will always be like that, just on his own little turtle time. Which of course will drive me mad! Maybe I'll put a lime green streak in my hair for him :)
Ben, Max, Gino, & Anjuli and I went to the tree lighting in Tolland tonight. The boys hung the lights earlier this week for the town, it took them the whole day, but it was worth it. The tree was beautiful. Good job boys! Tomorrow morning we are going to get our own tree with Grammy & Pompy A. and
spend some time with Max decorating the house. We could use some holiday cheer :) I want to find a little Christmas hat for Kayden (maybe one of the knitted ones). OR..OR, I could attempt to make one!? Bahaha yeah, ok, I'll stick to the art of hair styling.
I love the nurses here, we get along great. They seem to genuinely care about my son and family, and we have an actual relationship with some of them. My nurse tonight brought me a coffee from Starbucks, and even remembered how and what I liked. It made my day, which was already good!
Keep posted. Since I didn't have much to update with Kayden today, I might be productive tomorrow morning and post again after 9:00 am rounds. I'm curious to see, if he stays stable over the night, if they will still aim for mondays extubation? If so, there will be a lot of changes tomorrow.
Just for fun, incase some of you don't have Facebook, here are some new born shots we had taken of Kayden. They are by far more fun to look at than the scary ones :) Our friends at A glimpse in Time Photography are amazing, and I recommend you visit their website. They do stunning work, and are
very affordable... did I mention they are super sweet, too, and are on our prayer squad :)
Fingers crossed for progress X
Love,
Melissa & Kayden
Keep hanging in there Kayden. You are fighting a good fight. Grammy A loves you and misses you so much. Here's hoping to some slow but forward progress tomorrow. Melissa - I love your blog! It moves me every time. It's makes me so proud to see you how you've grown into an amazing mom and strong woman. I'm proud beyond words!
ReplyDeleteIt's great to see Kayden with his eyes open looking around! The fact that he hates the tape mustache and the tube is a good sign, means he's feeling better. Saw Ben and Max today, you are a strong fam Melissa, prayers to you all! Before you know it, Kayden will be home and bigger and wrestling Max to the ground <3
ReplyDeleteKayden I know you are a strong little boy and I know you will get through this! We all can't wait to see u home and with all of us. your lil buddy giana misses u and cant wait to snuggle with her favorite cousin! we are praying for u everyday lil man! love u very much <3 auntie Jen, uncle steve. angelo and giana
ReplyDeleteI want you to know that I've been reading your blog every day and you all are in my thoughts and prayers. I hope to meet little Kayden someday as I have faith he will be better soon. I actually miss the deli sometimes. I used to see Max all the time and occassionally all of you. It was nice. You are a great little family. You will get through this and you will all be stronger in the end!
ReplyDeleteAww I think of you guys often. You are sweet :) Let me know what color and style hat you want for him, you have one coming from that little contest!
ReplyDeleteI PRAY EVERY DAY FOR YOU LITTLE KAYDEN. yOU ARE ONE HANDSOME LITTLE GUY. I CAN'T WAIT TO SEE AT CHRISTMAS. I KNOW YOU WILL BE HOME BY THEN. AUNT BONNIE
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