No changes with Kayd today, he is still scaring us with his dipping spells. He had a few doses of Vecuronium to relax his muscles (even more), and extra doses of oxygen today. We haven't hit our turn around point yet. He is MUCH less swollen today, thanks to the lasiks drug.
Our struggles today have been those more of the mental and emotional kind. Along with our worries for Kayden, we have our other son to care for. Lucky for me and my kids, they have an amazing father. Trying to balance our time is upsetting. The PICU isn't exactly Max's favorite place, and he isn't allowed to stay overnight with us. Ben stays with Max at night, and I'm here with Kayden in the hospital. However, Max still has to go to school twice a week...oh and, of course, we have that fun life activity called work. :/ SO, when I'm here at the hospital I feel neglectful of Max, and when I leave to spend some time with him, I feel neglectful of Kayden. Even though we have an amazing family and friends who want to help us take care of Max, it doesn't take away the amount of time I would like to be spending with him. Truly, I just want my entire family back together again... But since that can't happen we just choose the best plan for each new day. Kayden fortunately won't remember this, and Max is a very happy kiddo, so that at least gives me mind at peace.
Today was also a very sad one for another reason. A very amazing, young, and talented woman that I had the pleasure of knowing and cheering with passed today from this crazy world we live in. She is surely dancing with the angels now... and probably teaching them a thing or two! Amy Jones was an incredible coach and choreographer. She has been battling her cancer for quite some time now, and a few hours after marrying her best friend this morning, God took her from him. Today I have a heavy, heavy heart for her family and all those closest to her. She made a difference in the lives of many kids through her coaching and now they have a beautiful angel watching over them <3 May you dance your ass off up there Amy, in peace :)
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